TY - JOUR
T1 - Compassionate deception
T2 - An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes
AU - Smedegaard Skov, Sofie
AU - Jensen, Anja M.B.
AU - Rasmussen, Gitte
AU - Paldam Folker, Anna
AU - Lauridsen, Sigurd
N1 - Publisher Copyright:
© 2024 The Authors
PY - 2024/12
Y1 - 2024/12
N2 - This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.
AB - This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.
KW - Compassionate deception
KW - Dementia
KW - Denmark
KW - Ethnography
KW - Healthcare ethics
U2 - 10.1016/j.ssmqr.2024.100457
DO - 10.1016/j.ssmqr.2024.100457
M3 - Journal article
AN - SCOPUS:85198061342
SN - 2667-3215
VL - 6
JO - SSM - Qualitative Research in Health
JF - SSM - Qualitative Research in Health
M1 - 100457
ER -